Parent Carer Support
MONEY MATTERS - USEFUL RESOURCES AND CONTACTS
Contact’s website provides advice and information about any concern you might have about raising a child with additional needs or a disability. This includes the latest updated information, support and advice about Coronavirus and its impact on families with disabled children on our Covid-19 (coronavirus) webpages.
Contact Publications list is a list of all out parent guides and fact sheets on a wide range of subject.
We also have: A Common Questions Tool to help you find what you're looking for quickly and easily; a benefits calculator and grants finder; a Live Chat service so you can ask us about your rights to services and support; and an online shop full of practical products for your child and family.
If you can't find what you need on our website you can call Contact's free helpline on 0808 808 3555 between 9.30am-5pm Monday to Friday or email firstname.lastname@example.org.
Contact now offers 1-to-1 confidential phone appointments for parent carers looking for a listening ear, reassurance and practical and emotional support.
If you wish to make an appointment please follow this link; 1-to-1 call backs.
You can also find us on Facebook, where you can join our private group:
Get your free copy of our Helpful Guide sent to your letterbox
We are delighted to announce that we are able to resume normal service and post free copies of The Helpful Guide for Families with Disabled Children straight to your letterbox. Order your copy today
Parent carer forums - https://www.contact.org.uk/media/1575740/contact_lists_for_website_feb_20.pdf
National Autistic society - www.autism.org.uk/
Cerebra – https://cerebra.org.uk/
Eric[the Children's' Bladder and Bowel Charity gives advice and info on continence problems in children as well as how to access health service funded nappy supplies: https://www.eric.org.uk/
Newlife[has a nurse led helpline and also gives out grants for aids and equipment and also has a fast track service for urgently needed items]: https://newlifecharity.co.uk/
Caudwell Children [a charity which offers various family support services as well as grants towards essential items, also funds certain therapies, has a particular focus on supporting children with ASD: https://www.caudwellchildren.com/
Disability- grants.org.uk [a very easy to navigate website which lists charities and trusts that give grants towards most items. Also has a particular webpage which lists all benevolent funds which may give grants to people who have worked in particular jobs or industries such as retail, police, hairdressing, accountants etc]: https://www.disability-grants.org/grants-for-individual-occupations.html
Turn2Us[a charity which has an online benefits checker, grants search engine and also has a webpage which enables you to find a local advice agency to help with benefit and grant applications: https://advicefinder.turn2us.org.uk/
Watersure[a scheme for people on a low income or on certain benefits or where a household member has a particular medical condition which warrants the high use of water eg skin conditions or incontinence, also must have a water meter : https://www.citizensadvice.org.uk/consumer/water/water-supply/problems-with-paying-your-water-bill/watersure-scheme-help-with-paying-water-bills/
Citizens Advice Bureau [every locality has a branch, they help with benefit applications particularly Universal Credit applications and have a very good website with one page which specifically lists grants and benefits to help with paying utility bills : https://www.citizensadvice.org.uk/consumer/energy/energy-supply/get-help-paying-your-bills/grants-and-benefits-to-help-you-pay-your-energy-bills/
Merlin's Magic Wand [a charity which gives a family of up to 8 members a free family ticket to one of their [Merlin] attractions e.g. Legoland: https://www.merlinsmagicwand.org/
DLA Days Out [a useful Facebook page which gives tips, advice and info from other parents of children on DLA on good places to take your child and which gives discounts and reductions to entrance fees: https://www.facebook.com/groups/DLAchildrensDaysOut/
Do you have an EHCP and have an annual review coming up? Amy, a member of FLARE, has created a resource to support you before and during the meeting. Click here for Amy’s tips and guidance: https://bit.ly/34MwNPh
Link between autism and eating disorders may be due to an inability to identify emotions – new research
"Link between autism and eating disorders may be due to an inability to identify emotions – new research" — https://theconversation.com/link-between-autism-and-eating-disorders-may-be-due-to-an-inability-to-identify-emotions-new-research-143022
Are you a home owner
Do you receive any of the following…
Nice little video on how to explain diversity
Overview of NICE Guidelines for children and young people under 19 on the Autism Spectrum
There are two NICE guidelines for children and young people under 19 relating to the autism spectrum:
- CG 128 – relating to recognition, referral and diagnosis
- CG 170 – relating to support and management
The following link will lead you directly to the pathway:
NICE reported that there may be some minor changes to CG 128 in the future, but that CG 170 is likely to remain the same. Any changes will be notified through this pathway link.
Face Mask Exemption Card
From Friday 24th July, the Government has set out a list of face covering exemptions, as they are mandatory in additional enclosed spaces.
People are not required to prove they are exempt and it is for individuals to choose how they would want to communicate this to others. For those who would feel more comfortable showing something that says they do not have to wear a face covering, exemption cards are available to print or display on mobile phones from gov.uk.
- Schools and colleges as part of career planning
- Families when thinking about options
- People wanting to move on from day opportunities who missed out on accessing work when they were younger